Tuesday, April 02, 2013

a note {autism acceptance day}

i've got blue on my mind today.


there's this blue campaign, to help raise autism awareness. 
i like blue a lot. and i think awareness is wonderful. but more than these things, i pray for acceptance.

when my son was first diagnosed with autism, we felt completely turned upside down. and like so many other times in our life, we realized that things would look different than we dreamed. our steps were being directed onto a new path. anxious, a little scared and angry, we began months of doctor visits, evaluation tests and therapies. now? over a year has passed. our circumstance hasn't changed, but we are now choosing to see it. the beauty in autism. to learn and to grow with our boy and his needs.

our soul waits for the lord;
he is our help and our shield.
 for our heart is glad in him,
because we trust in his holy name.
let your steadfast love, o lord, be upon us,
even as we hope in you.
psalm 33:20-22

autism doesn't need curing. it's not a disease. 
autism is beautiful, and difficult, intense and pure joy. autism is about passion and sensitivities. movement and routine. autism isn't scary or devastating. autism just needs to be seen. to be known and understood. we're learning this ourselves, with each new day.

hard days are very hard. smooth days are fuel to hope.  i'm grateful for god's fresh mercies with the rising sun, and his rest when it sets. we trust him to continue to open our eyes and hearts to exactly who our son is. and to give us the knowledge and skills we need to help him be his best wonderfully designed, awesome self. his autism is a disability, and we strive to accommodate his unique needs. greater though, is the task of celebrating his abilities. and that's what i want to encourage you to do today. 
celebrate strengths and interests of those autistic persons in your life! be aware of them. get to know them, for real. accept them.

don't know much about autism?
first of all, this is my son elijah. he's autistic. and this is what autism looks like:


we share bits and pieces from our own journey, in hopes of educating and encouraging others.

other helpful facts and encouraging reads that i love:

19 comments:

  1. You are the best mom, or uh, charlie! The way you lift Jesus high in your life inspires me! Love you, lady!!

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    1. praise jesus.
      love you, angel!! thanks for being so encouraging!

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  2. i know a lot of days are hard, or challenging or unknown for you guys - but just looking at this, there is SO MUCH BEAUTY in all of that. in autism. in your son.

    God is doing mighty things over there with you guys. :)

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    1. he is up to mighty business, no doubt.
      love you, cuppa!

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  3. My oldest son (6.5 years old)is also autistic and I share your journey of both mountaintops and valleys. I love that you shared that "smooth days are fuel to hope." So true! Thanks for your encouragement today!

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    1. yes! blessings to you and your sweet family! xo

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  4. I absolutely LOVE the "this is what autism looks like" intro to the beautiful pics of your son. That one line, followed by the pictures, show that no matter what, autism isn't all bad news or bad times. I love seeing a happy kid having happy days, no matter their ailment, diagnosis, label or status. My girl has some minor issues, but I don't ever want them to define her, or me, as the mother of a child with this, that, and the other.

    You look like an amazing woman, and your family is blessed. I forgot to wear blue today, but I've been thinking of you all day. Keep up the good work, and keep on sharing these happy days, because we love seeing them!

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    1. thanks for your kind words.
      i don't feel like an amazing anything haha! god is merciful and gracious to help me along in this wild adventure in parenting. grateful for your encouragement! xo

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  5. I think Elijah is one lucky little dude to have been blessed with such incredible parents in you & Patrick, who love him and fight for him & with him and who love him unconditionally just the way he is.

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    1. kelly. you are too sweet! we are super blessed!

      happy weekend xo

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  6. i just love your perspective on things and your beautiful words. i love what you said about autism not needing curing.
    YES! it just needs understanding.
    i love you hannah.

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    1. love you too, kelly! thanks for your support and for being a great friend xo

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  7. first, that picture of E and P in the bathroom. can't stand it! i know i've said it before but you three are so perfectly put together. i love your family with my whole heart.

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    1. we love YOU.
      and i know, the pic is too much.

      xo

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  8. its fun (not sure if fun is the right word), encouraging, to look through your blog. Sounds so much like our son (diagnosed pddnos at 4) tonight he was crashing around in circles. I admire what you have said and the encouragement you bring!

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